Privacy Policy

 

Thank you for visiting the websites for the “I’m In” campaign and the Clinical Trial Engagement Network (the “Network”).  This Privacy Policy (“Policy”) describes how information is collected, used, and disclosed through any “I’m In”-branded-websites, the Network, and any other online services relating to the “I’m In” campaign that link to these Terms (collectively, the “Services”).  Please read the entire Privacy Policy before using the Services.  By using the Services, you consent to the terms of this Privacy Policy.

“I’m In” is a campaign founded by the National Minority Quality Forum (the “Forum,” “we,” or “us”) and the Pharmaceutical Research and Manufacturers of America​ (“PhRMA”) to improve health by increasing clinical trial participation among traditionally underrepresented populations through advocacy, education, and technology.  When patients, investigators, or advocates join the campaign and submit information, the Forum collects and maintains that information in the Network.

The Network is an internet-based environment operated by the Forum that connects patients, clinical trial sponsors, clinical investigators, health care professionals, their institutions, and advocacy organizations across the nation.  Only organizations that have entered into a separate agreement with the Forum (“Network Members”) may access information contained in the Network that we have collected from patients, investigators, and advocates.  PhRMA does not participate in the operation of the Network.

1. Information We Collect

You generally are not required to provide information about yourself when you visit the Services.  However, you may be asked to provide some or all of the following types of information when you join the campaign; complete a patient, investigator, or advocate profile; become a Network Member; access various content or features; or directly contact us with questions or feedback:

• Contact information, such as name, e-mail address, phone number, and zip code;
• User name and password;
• Demographic information, such as race and gender;
• Health-related information;
• Information about your interest in clinical trials relating to specific diseases or conditions and in certain geographic areas;
• Information about your professional experience and qualifications;
• A National Provider Identification Number;
• Geolocation information;
• Correspondence and other information that you send to us; and
• Additional information as otherwise described to you at the point of collection or pursuant to your consent.

We also may collect certain information automatically when you visit the Services, including:

• Your browser type and operating system;
• Your Internet Protocol (IP) address, which is the number automatically assigned to your computer whenever you access the Internet and that can sometimes be used to derive your general geographic area;
• Other unique identifiers, including mobile device identification numbers;
• Sites you visited before and after visiting the Services;
• Pages you view and links you click on within the Services;
• Information collected through cookies, web beacons, and other technologies;
• Information about your interactions with e-mail messages, such as the links clicked on and whether the messages were opened or forwarded; and
• Standard Server Log Information

We may use cookies, pixel tags, Local Shared Objects (sometimes referred to as “Flash Cookies”), and similar technologies to automatically collect this information.  Cookies are small bits of information that are stored by your computer’s web browser.  Pixel tags are very small images or small pieces of data embedded in images, also known as “web beacons” or “clear GIFs,” that can recognize cookies, the time and date a page is viewed, a description of the page where the pixel tag is placed, and similar information from your computer or device.  Local Shared Objects (sometimes referred to as “Flash Cookies”) are similar to standard cookies except that they can be larger and are downloaded to a computer or mobile device by the Adobe Flash media player.  By using the Services, you consent to our use of cookies and similar technologies.  You can decide if and how your computer will accept a cookie by configuring your preferences or options in your browser.  However, if you choose to reject cookies, you may not be able to use certain online products, services or features on the Services.

2. Use of Information

We may use information that we collect through the Services for a variety of purposes, including to:

• Build, maintain, and operate the Network;
• Match potential volunteers with clinical trials and facilitate interactions between patients or investigators and clinical trial administrators;
• Contact you to alert you of potential opportunities related to participation in clinical trials;
• Provide users with the services and information they request;
• Customize and personalize your use of the Services;
• Contact you to verify the information that you provided and to respond to correspondence that we receive from you;
• Contact you via email and otherwise with information that we think might be of interest to you, and with surveys, legal notices, and other information that may be relevant to your use of the Services;
• Maintain or administer the Services, perform business analyses, or for other internal purposes;
• Improve the quality of the Services or any related initiatives or services; and
• As otherwise described to you at the point of collection or pursuant to your consent.

We also may use information that does not describe or identify individual users, such as aggregate website usage data or demographic reports, for a variety of purposes, including conducting clinical-trial-related research.

3. Sharing of Information

We are committed to maintaining your trust, and we want you to understand when and with whom we may share the information we collect.

• Service Providers.  We may share your information with service providers that perform certain functions or services on our behalf, such as to host the Services, manage databases, perform analyses, or send communications for us.

• Other Network Members.  We may share your information with Network Members to facilitate underrepresented populations’ participation in clinical trials.  If PhRMA becomes a Network Member, we may share information with PhRMA that we would share with other Network Members.

• Other Parties When Required By Law or as Necessary to Protect the Services.  We may disclose your information to third parties in order to protect the legal rights, safety, and security of the Forum, PhRMA, the I’m In campaign, the Network, Network Members, our business partners, and the users of our Services; enforce our Terms of Use; prevent fraud (or for risk management purposes); and comply with or respond to law enforcement or legal process or a request for cooperation by a government or other entity, whether or not legally required.

• In Connection With a Transfer of Assets. If we sell all or part of our organization, or make a sale or transfer of assets, or are otherwise involved in a merger or business transfer, or in the event of bankruptcy, we may transfer your information to one or more third parties as part of that transaction.

• Other Parties With Your Consent. We may share information about you with third parties when you consent.

• Aggregate Information.  We may disclose to PhRMA or third parties information that does not describe or identify individual users, such as aggregate website usage data or demographic reports.

PhRMA and the Forum may allow third parties to place and read their own cookies, web beacons, Local Shared Objects, and similar technologies to collect information through parts of the Services other than the Network.  Only the Forum may allow third parties to place and read their own cookies, web beacons, Local Shared Objects, and similar technologies to collect information through the Network.  For example, third-party service providers may use these technologies to collect information that helps with traffic measurement, research, and analytics.  Local Shared Objects (sometimes referred to as “Flash Cookies”) are similar to standard cookies except that they can be larger and are downloaded to a computer or mobile device by the Adobe Flash media player.  Please note that you may need to take additional steps beyond changing your browser settings to refuse or disable Local Shared Objects and similar technologies.  For example, Local Shared Objects can be controlled through the instructions on Adobe’s Setting Manager page.   If you choose to refuse, disable, or delete these technologies, some of the functionality of the Services may no longer be available to you.

We do not share information that we collect through the Services with third parties for the third party’s direct marketing purposes.

4. Data Security

Reasonable security procedures are in place to help protect against loss, misuse, unauthorized access, disclosure, alteration or destruction of the information you provide to us.  Please note that no data transmission or storage can be guaranteed to be 100% secure.  As a result, while we strive to protect your information and privacy, neither the Forum nor PhRMA can guarantee or warrant the security of any information you disclose or transmit to the Forum online and cannot be responsible for the theft, destruction, or inadvertent disclosure of your information.

You are responsible for maintaining the confidentiality of your account password and for any access to or use of the Services using your password, whether or not authorized by you.  Please notify us immediately of any unauthorized use of your password or account or any other breach of security.

5. Children’s Privacy

The Services do not knowingly collect, use, or disclose personal information from children under the age of 13.

6. Social Networking Services

We and PhRMA have worked with certain third-party social media providers to offer you their social networking services through the Services.  For example, you can use third-party social networking services, including but not limited to Facebook, Twitter, and others to share information about your experience on the Services with your friends and followers on those social networking services.  These social networking services may be able to collect information about you, including your activity on the Services.  These third-party social networking services also may notify your friends, both on the Services and on the social networking services themselves, that you are a user of the Services or about your use of the Services, in accordance with applicable law and their own privacy policies.  If you choose to access or make use of third-party social networking services, we may receive information about you that you have made available to those social networking services, including information about your contacts on those social networking services.

You also may be able to link an account from a social networking service (e.g., Facebook, Google) to an account through our Services.  This may allow you to use your credentials from the other site or service to sign in to certain features on our Services.  If you link your account from a third-party site or service, we may collect information from those third-party accounts, and any information that we collect will be governed by this Privacy Policy.

7. Privacy Policy Updates

We may modify this Privacy Policy at any time by posting revisions to the Services or other appropriate notice.  Your continued use of the Services after any modification to the Privacy Policy will constitute your acceptance of the new terms and conditions.

8. Links to Third Party Sites and Services

The Services may contain links to other websites or online services that are operated and maintained by third parties and that are not under the control of or maintained by us or PhRMA.  Such links do not constitute an endorsement by us or PhRMA of those other websites, the content displayed therein, or the persons or entities associated therewith.  This Privacy Policy does not apply to this third-party content.  We encourage you to review the privacy policies of these third-party websites or services.

9. International Users

Please note that the Services are directed towards users who reside in the United States. By using the Services, you consent to the collection, storage, processing, and transfer of your information in and to the United States, or other countries and territories, pursuant to the laws of the United States.  While some of these countries may not offer the same level of privacy protection as your own, we commit to uphold the privacy protections as explained in this Policy.

10. Your California Privacy Rights

We do not share information that we collect through the Services with third parties for the third party’s direct marketing purposes.

Some web browsers may transmit “do-not-track” signals to the websites with which the user communicates.  Because of differences in how web browsers incorporate and activate this feature, it is not always clear whether users intend for these signals to be transmitted, or whether they even are aware of them.  Because there currently is no industry standard concerning what, if anything, websites should do when they receive such signals, we and PhRMA currently do not take action in response to these signals.  If and when a final standard is established and accepted, we will reassess how to respond to these signals.

11. Communications Preferences

You may receive promotional emails, newsletters, and similar communications from us.  You may opt out of receiving commercial emails by clicking on the opt-out or “unsubscribe” link included in the commercial e-mails you receive.  Please note that opt-out requests may take up to 10 business days to be effective.  Your opt-out request will not apply to messages that you request or that are not commercial in nature.

12. Your Choices and Your Information

If you have created an account through the Services and would like to deactivate it, you may email support@joinimin.org.  We will send you an email confirming deactivation of your account.  If you would like to correct or update your information, you may log in and edit your profile on the Services.

13. Contact Us

If you have any questions about this Privacy Policy, you may contact us at: support@joinimin.org.

Last Updated: March 12, 2014.